NHS failing MS patients

A survey of services for people with multiple sclerosis (MS) by the Royal College of Physicians’ Clinical Effectiveness and Evaluation Unit (CEEu) and the MS Trust shows that the NHS is still failing to implement the 2003 NICE guidelines on the management of MS patients.

Access to neurological rehabilitation services remains inadequate – only 36% of people with MS had access to such services. Although access to specialist neurological services has improved, there are still long delays from GP referral to diagnosis, with 50% of all patients waiting over 20 weeks.

The survey also reports that 6% of people surveyed had developed a skin pressure ulcer during the previous 12 months. Occurrence of pressure sores was NICE’s identified “quality marker” for MS services. A grade 4 pressure ulcer costs the NHS an estimated £10,551, with total costs in the UK of up to £2.1 billion – about 4% of the total NHS expenditure.

Professor Ian Gilmore, president of the Royal College of Physicians, said: “It seems incredible that after five years we are no nearer to commissioning the full range of services that MS patients need and deserve.”

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